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Tuesday, August 2, 2011
Letter to the Editor
UPDATE TWO: Unfortunately, the response from MN Parent was pretty disappointing. There was no real correction. Instead, there was a clarification that no study has been shown to link vaccines and autism. Instead of acknowledging the other errors in the piece, the editors felt they needed to validate the mother's search for "truth"--apparently even if in that search she misinforms thousands of parents--and use this as a reason they do not challenge her facts. Also, the editors disputed the information I gave them about the state with the highest rate of autism. I guess the CDC isn't reliable enough. It's enough to make me think that this publication has an anti-vaxxer pretty high on the masthead. It's really too bad...it's an otherwise nice magazine.
UPDATE: I received a gracious reply from the executive editor of MN Parent. There might be a correction run in the next issue. I will keep you updated.
Editor's Note: In the August 2011 issue of Minnesota Parent, a local free publication distributed in Minnesota, a mother was profiled in the magazine's "Real Parents" feature. The parent, Jennifer Vanderhorst-Larson, is the parent of a ten-year-old autistic child. She seems like a nice lady. However, in her profile, and uncorrected by the editors of the publication, she makes some statements about vaccines and autism that are egregious and false, including the jaw-dropping assertion that "1 in 28 Somali children" are autistic (They make up 1 in 28 in a population of diagnosed autistic children.) I was literally sick to my stomach after reading her profile and decided I had to speak up. Below find my letter to the editor. I am posting this to encourage other Moms and Dads Who Vax to speak up whenever the media fails to do its job when discussing this issue. When we remain silent, we agree. And members of the media cannot be allowed to fall down on the job on this issue, when lives are at stake.
I was distressed and profoundly disappointed after reading the Real Parents in this month's Minnesota Parent. As a mother and journalist, I have always enjoyed the reportage and first-person accounts in your magazine. But upon reading Jennifer Vanderhorst-Larson's profile, I was struck dumb. You profile a mother of an autistic child who is involved with special education efforts. That's great. However, you allow her to speak as an expert on vaccines, autism, and even the incidence of autism in the Somali community, all the while not doing any fact-checking of her statements, and writing, as the editorial voice introducing her, that her child was diagnosed with autism after his fifteen-month vaccinations, instead of stating how old Cade was when he was diagnosed, which would have avoided creating a link in the reader's mind. As you know, study after study after study has found absolutely no link between vaccines and autism. As you also know, children and infants have fallen ill and died from vaccine-preventable diseases because people are not vaccinating their children because of a fear of this non-existent link.
She also says Minnesota has the highest rate of autism. This is incorrect. In the latest, most comprehensive accounting of autism diagnoses in this country, the CDC found New Jersey had the highest incidence of autism, 1 in 94.
Finally, in what I think is the most egregious mistake in her story, she says 1 in 28 Somali children in the Twin Cities have autism. She may not understand the statistics she is looking at: the Minnesota Department of Health estimated that of diagnosed autistic children in Minnesota, you could expect to find a Somali child in one of every 28 diagnosed children. This is a far cry from 1 in 28 Somali children, which is what she states in her profile. There is, in fact, no firm number on the incidence of autism in the Somali community--and that is why the CDC just funded a study to discover the incidence and to understand why it seems to be higher than other populations. I won't bore you with her misapplication of the word epidemic in connection to autism and the possibility that it is, in part, a genetic disorder.
It's disappointing to see the vaccine-autism myth handled in this way by a trusted local publication that aims to support and educate parents, and usually does. I believe the responsible thing to do in this case would to have been either to keep to Vanderhorst-Larson's area of expertise--education and founding IT companies--and edit out her comments on vaccines and statistics (unless you planned to fact-check those statistics and her claims about vaccines, which didn't happen) or to run an editor's note with her profile pointing out that autism and vaccines have not been found to have any link, despite numerous studies that have looked for that link. This is not a matter of opinion; if it were, I wouldn't be writing to you. This is a matter of science and public health, and it is reckless for a publication like yours to let a parent spread false, misleading, and downright scary information in a forum such as your Real Parents profile, which I bet is a very popular part of your magazine. (Definitely the first page I turn to!) Errors like Vanderhorst-Larson's, which are very, very commonly heard in the anti-vaccination community, cannot go uncorrected. I beg you to run an editor's note correcting her misstatements of fact, lest a new parent read these comments and choose not to vaccinate her baby because of them. Let that parent, at least, make that decision based on facts, not falsehoods. Thank you.