Showing posts with label vaccine injury. Show all posts
Showing posts with label vaccine injury. Show all posts

Wednesday, November 9, 2011

An Attachment Parenting Mom on Watching "The Greater Good"

By Jennifer Westmoreland Bouchard

I went down the anti-vax rabbit hole the other night. I have to admit that I learned a lot. This not-so-fantastic voyage was prompted by the fact that several friends and acquaintances had recommended I watch “The Greater Good,” described to me as a dispassionate, fair-and-balanced documentary that offers a glimpse into the complex vaccine debate.
The people who recommended this film to me largely share my parenting philosophies. For all intents and purposes, I consider myself a practitioner of attachment parenting (AP). I exclusively breastfeed my four-month-old daughter, we practice elimination communication, I wear her as much as she’ll let me, and I am extremely careful about the products I allow her to use. 
But I’ve noticed an anti-vaccine trend in attachment parenting groups (I partially attribute this to Dr. Sears’ delayed vaccine schedule), to such an extent that I always feel compelled to add that I am pro-vax whenever I’m in a conversation about AP. So, yes, I've become the AP parent who vaccinates according to the routine vaccinations scheduled outlined by the CDC. Why? Because my daughter deserves better than to be put at risk for serious illness as a result of baseless claims and anecdotal evidence. Because my community deserves better than to be subjected to an epidemic, to travel back in time to a much more dangerous time in human history, a time before safe, effective vaccines were available to a majority of the U.S. population.
I’ll be honest: I knew going in that “The Greater Good” was going to be about as fair and balanced as Fox News and as dispassionate as… well, a one-sided conversation about vaccines. I decided to approach my viewing as a sociological study, as a way to begin to understand why there are still those out there who believe the myriad falsehoods and leaps of logic that run rampant in anti-vax side of the vaccine debate.
Five minutes into the film, I wasn’t sure if I could make it through the whole thing, but I pushed ahead in the name of research. In short, the film was everything I thought it would be and more. Creative (read: deceptive) editing and splicing of sound bytes, vague science, anecdotal "evidence," everything you'd expect from a film with full support from Joe Mercola (for information on Joe Mercola, visit Science-Based Medicine's post about his appearance on Dr. Oz's show). The only reasonable parts of the film were the sections featuring Dr. Paul Offit. (I guess these few scenes were the filmmakers attempt at fair and balanced), who says something logical, then the film cuts to a figure such as notorious anti-vax crusader Barbara Loe Fisher who contradicts what he said, and then it cuts to a heart-wrenching anecdote about a child whose illness was “caused by vaccines.” There were, of course, no anecdotes about unvaccinated children whose lives had been ruined by preventable diseases.
Needless to say, I would never recommend this film to anyone. It’s simply a rehashing of all of the old anti-vax chestnuts (yes, the same ones that have been debunked by the medical community over and over). However, I’m glad I watched it. It helped me understand where anti-vaxxers get their information, and how these notions of false causality become hardened truths in their minds.
Though I’m tempted to give it a go, I’m not going to pick apart the film point-by-point. This has already been done by those much more knowledgeable about vaccine debate than I. For starters, try this piece in the Vaccine Times that dissects the film’s trailer: . Or Gorski’s remarkable dissection of the entire film at Science-Based Medicine. 
Never did I imagine that vaccinating my daughter would be perceived as a political or philosophical statement. Never did I imagine that my pediatrician would noticeably relax, relieved when I told her that we were committed to following a routine vaccination schedule. It saddens and angers me that the anti-vaccine voices have become so loud, and that more and more people are being duped into refusing vaccines for their children. Good parents question the safety of everything. It’s what we do. Questioning is important, yes. But it’s even more important to base those questions on hard scientific evidence, on correct information.
We live in a climate where everyone can get a “degree in vaccination studies” at the “University of Google.” As I remind my college students each semester as we come to final paper time, Internet research is fine, just make sure you consult quality sources. Be analytical, be tough, be unrelenting when it comes to the veracity of the information you’re reading. It is my job as a Mom Who Vaxs to be a quality (re)source, to continue to educate myself not only on the science that supports benefits of vaccines, but also on the rhetoric of the anti-vaxxers (so that I can debunk it for those who are still “on the fence” about vaccinations, or anti-vaxxers who are willing to question their views). This is my best hope for helping to make our society safer for our kids, safer for all of us.
Jen Westmoreland Bouchard is a writer, teacher, translator, and mother.




 





Monday, October 24, 2011

The Incredible Hulk Vaccine Side Effect: Or, Understanding VAERS


By Karen Ernst

Inevitably, in the course of speaking with someone who wants to support her decision not to vaccinate her child, you will be asked to read the VAERS (Vaccine Adverse Events Reporting System) database. Reading VAERS is not inherently wrong or bad. However, before reading VAERS, you should understand what it is and what you will find there.


VAERS is the place where doctors, patients, and really anyone else can report what they suspect to be side effect of a vaccination. The CDC and the FDA co-sponsor this data base, and they use it to monitor possible vaccine side effects. When certain patterns or clusters of similar reports appear, public health officials investigate these events and make appropriate recommendations. For example, in 1999, VAERS caught a higher than expected incidence of intussusception—a bowel disorder—following adminstration of RotaShield, a rotovirus vaccine.  Epidemiological studies confirmed the heightened risk of this side effect, and the vaccine was pulled from the market.


In this sense, VAERS is invaluable. It gives public health officials the information they need in order to keep our immunization program as safe as possible. As a parent, I take comfort in the fact that VAERS exists and that people who know how to analyze the data are on top of it.


However, VAERS is a passive reporting system. This means that anyone can report anything to it. There is no go-between. It’s almost like an online forum or message board; anyone can post and no one vets the claims. As such, a report in VAERS does not prove that any adverse event was actually caused by vaccines.  In fact, it doesn't even prove that any reported adverse event actually existed. One of the more well-known examples of how any report makes it into VAERS was Dr. James Laidler’s report that the influenza vaccine turned him into the Incredible Hulk. He inspired Kevin Leitch from Left Brain Right Brain to report a similar Wonder Woman adverse event. 

Of course, those examples are a bit tongue-in-cheek. There are other events people submit, however, which can be taken no more seriously.  For example, here is one reported event, taken word for word from the VAERS data base:



“Information has been received from a nurse practitioner concerning a patient’s nephew, a 17-year-old male consumer who she "thought" was vaccinated with a dose of GARDASIL (lot number not provided) in November 2010. The nurse practitioner stated that two weeks after the patient received the dose of GARDASIL, approximately November 2010 (also reported as "two weeks ago" on approximately 01-APR-2011), the patient died of sudden cardiac death on the lacrosse field. Unspecified medical treatment was given. It was unspecified if any lab diagnostic test were performed. The cause of death was sudden cardiac death. Sudden cardiac death was considered to be immediately life-threatening and disabling by the reporting nurse practitioner. Additional information has been requested.”



In this third-hand report (a nurse practitioner reporting about the nephew of a patient), VAERS cannot even confirm whether or not the deceased ever received the vaccine in question. In another very sad report, suicide (following a history of suicidal ideation) is blamed on a vaccine: “Known chronic depression, she elected to stop her medications when she turned 18. Committed suicide 04/28/11. Hung herself.”



Other similar reports are made here at the well-known anti-vaccine site National Vaccine Information Center. Included in this one page of the VAERS data base are people who read something on the internet and made a VAERS report.  Sometimes the same person made multiple, similar, vague reports. That bereaved parents and concerned others make reports to VAERS is not troublesome, even when these reports may be dubious or even fraudulent.  Epidemiologists and public health experts know how to wade through the overwhelming amount of information in order to determine the safety of our vaccines.
But the anti-vaccine movement relies heavily on the VAERS data base to frighten parents away from vaccines, and this is extremely troublesome. 

VAERS does not prove causation, or even correlation, when it comes to side effects and vaccines. Parents would be far better off trusting their doctors who have examined the studies done to ensure the safety of the vaccines we use to protect our children. As parents, it’s easy to be scared off vaccines by reports of “vaccine injury.” However, when making a decision as crucial as this one, we must know where our information comes from and the truth behind the way it is presented.